Living with Multiple Sclerosis, or any other chronic disease, is no joke, it's REAL. It is very easy to find on the Internet articles on what should NOT be said for people living with chronic diseases, but what about the things that MUST be said? To the family and friends of people who have a chronic disease, especially multiple sclerosis, here are some things to tell them, so they know how much you support them.
1. I BELIEVE IN YOU
We deal with numerous invisible symptoms daily. Keyword: INVISIBLE. That is, you can not see them. But just because you can not see our pain, don't say we don't feel it. When we complain about "needles" on our feet, or "shocks" that go up and down our back, or the "blurred" vision, or extreme tiredness, please do not see us as whiners. Yes, we can be "so sick". If you had to deal with these invisible symptoms, you would certainly understand. We do not pretend these things, we really feel them. So please, just believe in us.
2. I'M HERE FOR YOU
We need to know that we have the support of the people we love. We need to know that these people will not abandon us. Therefore, reaffirm that you're not going anywhere. Imagine being or feel alone; Now add to that feeling a chronic disease. How would you feel? Friends and family should be by your side the best and the worst times, so show us you will always be there. In this way we will know who are the people we can rely on.
3. TELL ME ABOUT MS - I WANT TO KNOW WHAT YOU ARE GOING THROUGH
In order to truly help, you should know all you can about the disease. This is something that means a lot to us, Multiple Sclerosis patients. How about doing a Google search? Visit Associations and read about it. See videos of real experiences on YouTube. Follow Organizations World of Multiple Sclerosis in the various social networks. We do not want to pressure you, but sometimes it would be great to hear you say that you would like to learn more about our lives with the disease.
4. YOU ARE SO STRONG
Yes you are !!!
The strongest people are not those who show their strength in front of us - but those who fight without us knowing about their battles. However, we do not feel strong. We feel weak and fatigued every day. You have any idea how difficult it was to shower this morning? Yes. CAN BE VERY DIFFICULT. A person with Multiple Sclerosis (or other chronic disease) consumes five times more energy to do the simplest tasks compared to those who do not have a disease. Imagine you have stuck weights in each member of your body, now go ahead and make your daily routine with these weights. See how we are strong? It would be so good if we heard that from our friends and family regularly.
5. YOU DON'T DESERVE THAT - IT'S NOT YOUR FAULT
No one deserves to live with MS or other chronic diseases. But things happen, right? Sometimes we tend to blame ourselves. "Maybe if I had eaten more fruits and vegetables." "Maybe if I had exercised me more." "Maybe if I had done this instead of that." However, studies will say that there are not any known causes for Multiple Sclerosis (it is the result of a set of factors). It is natural that sometimes we ask ourselves "what if I had done that differently?". We need to hear from our friends and family that we do not deserve this disease or that is not our fault.
To hear these things gives us the certainty that we have a strong and comforting support system. The most simple things count.
Certainly, topics above are not the only ones you should say to someone living with MS or other chronic diseases. Feel free to share your thoughts and opinions, if they are positive and optimistic. We have enough fears and anxieties, our longer, ok?